Two-year old Mila was born in January 2014 and was sadly diagnosed with Cystic Fibrosis when she was only three weeks old. A lot of people don’t understand what cystic fibrosis is, or what it does, until someone close to them is affected by it. They soon discover it’s a life-shortening genetic condition - only half live to celebrate their 40th birthday. The faulty gene is carried by over two million people in the UK, most of whom have no idea. If two carriers have children, there’s a one in four chance their child will have the condition, which slowly destroys the lungs and digestive system. Most people with cystic fibrosis look perfectly healthy, but it’s a lifelong challenge involving vast daily intakes of drugs, time-consuming physiotherapy and isolation from others with the condition. It places a huge burden on those around them and can critically escalate at any moment.
For Mila, her daily routine consists of a cocktail of medication, including antibiotics twice daily and creon granules every time she eats, which helps her to digest her food properly as she is Pancreatic insufficient. Mila's parents, Vicky and Paul, perform physiotherapy, lasting 30 minutes per day, which is highly unpleasant and upsetting for a young child to go through. Mila is a fighter and is loved by all that she meets, she is a very happy child and we want her to live a long and happy life. The average life expectancy for people with cystic fibrosis is 41 years old. Team Mila are trying to raise money and awareness in the hope that one day, they will find a cure for this horrible condition.
Mila’s family and friends have gotten together to form #TeamMila and are organising a variety of challenges, activities and a charity ball event to help raise funds for the Cystic Fibrosis Trust. The money raised will help us fight to beat cystic fibrosis and make a daily difference to the lives of those with the condition and the people who care for them.
Donate to Team Mila
Team Mila are raising funds for the Cystic Fibrosis Trust. You can donate via the methods below.
Team Mila raising funds on behalf of the Cystic Fibrosis Trust Reg No. SC040196.
Cystic Fibrosis Trust is registered as a charity in England & Wales (1079049) and Scotland (SC040196). Registered office: 11 London Road, Bromley, Kent, BR1 1BY
Virgin Just Giving
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